This will be my final post.
I have had amazing feedback on my lengthy honest blog that details most aspects of my experience with Guillain Barre Syndrome.
I am now six years away from diagnosis. What I can say is that, in my case, physical improvements continued, although at a much slower rate until this very day. At most times, it would have seemed that improvements stopped all together, but no, a day comes after months of 'waiting', where all of a sudden I would feel electrical-like pain or cramps in unusual places and observe very obvious improvements in motion-fluidity and/or strength. This was especially noticeable towards the extremities of my body, namely fingers and toes.
So the key question, I guess, is, how am I now? Am I back to normal again? It would be tempting to say that yes, I indeed am. However, GBS leaves you as a different person and if you focus on what's worth focusing on in life, a better one. Perhaps to my logical self, I strive to see how this can turn me into a better, stronger one. At least that is my continuous goal. My hand tremors are still evident sometimes and my frustration at handling delicate tasks requiring serious deep concentration rears its head at times. I'm not even sure if it's funny or ironic anymore...... I have visited patients, since my volunteering initiative, who years later, are still unable to use their hands well or at all. I've seen others (especially those affected with the Miller Fisher variant) who recovered extremely fast and with minimal apparent nerve damage. One can't really compare - we are so unique affected....
How how does this all end? Is there a real end to it? Is it all really all that relativistic like this? Does an idealistic END really matter?
I guess it's really is all relative. I am an example, I can now realise, of a GBS survivor who recovered almost to 100% completion. Each person will have his own GBS story. A personal struggle, perhaps, even a custom personal type of pain to endure. But with this comes also, a personalised type of experience, a personalised type of lesson and a personalised insight about life, health and the fragility of it all, friends and real-friends, family and real-family.
Yes, GBS should make you real. Like no other. A real realist, with a focused focus on what should really matter, with no time to waste on the petty and the trivial. Petty and trivial things and/or persons, that is. Each person's GBS experience is different and yet similar in so many ways.
Thank you all, for following my story. You too have been part of it. The readers, the commentators and those who even established contact with me.
I salute you all, fellow humans.
Live.
Glad I found your blog. I'm only about 3 months from diagnosis, but quite impatient. Although I know it takes time, reading your story helped me to stop and go one day at a time. Thank you, and all the best!
ReplyDeleteKeep strong. I hope you have improvements by the time you read this reply.
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